The black box of DIPG

The black box of DIPG

Overturning dogma to open the black box of DIPG  by TOM ULRICH on JANUARY 12, 2015 You can’t advance the care of a disease that you can’t study. And for 40 years, that was the case with a rare, uniformly fatal pediatric brain tumor called diffuse intrinsic pontine...
Meet Buzz ~ Aidan’s Gift

Meet Buzz ~ Aidan’s Gift

It’s been awhile since we have posted. Things here are as expected, good moments and of course many sad days. The holiday season has been especially difficult for the whole family as we get closer to our first Christmas without Aidan 😥 . Aidan gave us a...

Home Sweet Home

We’re home and getting settled in to some new routines. Here is a brief recap of the past two weeks(thank you again for all the prayers)… On Sunday, May 18th, Aidan was complaining of a headache, neck pain and abdominal pain. He was not able to keep anything...